Kindness & Community

A few weeks ago I uploaded a video to my YouTube channel and wrote a blog post to go with it. It was something I had been putting off for quite awhile for several reasons that I discuss in the video, but a main one was I didn’t want to come off preachy. I was worried that after posting a video which essentially scolded people for leaving particularly hurtful comments, people would lash out and I would be welcoming some kind of cruel verbal backlash upon myself and my social media.

Boy, was I wrong.

I feel like it’s unfair for me to make a video/ blog post addressing negative comments without then posting this follow up celebrating the subsequent positive feedback. That is definitely not to say that I haven’t received kind comments before posting the video about my tremor because I absolutely have. I have been really lucky with my YouTube experience and the wonderful people that have reached out to me through my videos. But the comments I’ve received after posting my Essential Tremor video have honestly blown my mind.

Something I address in the video is the lack of community for Essential Tremor patients in comparison to that of many other conditions. It’s something that has a severe lack of awareness, and so getting to hear from people who struggle with the same thing as me was such a special experience. I feel truly blessed to have people who feel strongly enough about me or ET to reach out and share their stories or other positive, kind words. I have even received messages on Instagram and Tumblr following the posting of this video and the love and kindness I’ve felt from all these individuals has been a true blessing.

Shortly after the date that I posted my video, the FDA approved an ultrasound-based treatment for ET that has been shown to be very effective while also being minimally invasive. While I do have a relatively minor case of Essential Tremor, it has progressed significantly even in the past couple months and knowing that there are options for me (especially ones that don’t involve brain surgery), is life-changing. I am excited about all the possibilities and I have an upcoming appointment with a specialist to go over my treatment options.

I just want to end this post by including some of the insanely kind comments I have received over the past few weeks as a result of my Essential Tremor video. Thank you all so much, you’ll never know how much it means to me.

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Thank you to all the incredible people who have shown support and shared their own stories. Let me know if you have any questions, I’d love to hear from you!

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1 Comment

  1. September 9, 2016 / 1:21 pm

    I was diagnosed with ET today and wanted to thank you for posting your video. I’ve had tremors that have progressively gotten worse over the last six years. Initially they were blamed on medication that I stopped taking. One of my favorite things in life is art and I cried when I learned that this would continue to get worse. Your video made me feel so much better. Thank you.

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